Brave, bruised, and better for it

With apologies for the spoiler, I can hardly believe it went without a hitch. Back in the depths of winter, when Benjamin’s health appeared relatively stable, we rashly booked ourselves a summer holiday, more than two hours drive from our local hospital. Twelve hours drive and sixteen hours ferry away from our local hospital. Abroad! … Continue reading Brave, bruised, and better for it

Torn

We are just back from weekend trip to Aberdeen. I say ‘we’. I mean my husband and I, and the two girls. Our first trip away without Benjamin. I think we pulled off a pretty good impression of a ‘normal’ family on a ‘normal’ trip. Dare I say 'minibreak'? A few bags slung into the boot … Continue reading Torn

In the shadow of Storm Brian

“You on your own then?” (I hasten to add this isn't a #metoo story; this was a genuine expression of surprise/concern). “Well my husband will be here soon [before it bloody rains, selfish ****]. He's cycling from Scotland.” “Ah (eyeing the back end of a five year old that has already spotted a rabbit and … Continue reading In the shadow of Storm Brian

Five things I’d change

This post was written for the #SEND30daychallenge, day 7: ‘Five things you’d change.’ We are so fortunate to live in Scotland, where there are really very few things that need to be changed so that Benjamin, and children like him, can live a safe, healthy, and happy life for as long as their biology and … Continue reading Five things I’d change

Gone camping (again)

By popular request (although the friends due to come camping with us later in the year may regret it), there follows a report of this year’s Family Summer Holiday: A Wet Weekend in Wooler. Not that I’ve got anything against Wooler. Well not much. Read on. They say rain sounds much heavier from inside a … Continue reading Gone camping (again)