Brave, bruised, and better for it

With apologies for the spoiler, I can hardly believe it went without a hitch. Back in the depths of winter, when Benjamin’s health appeared relatively stable, we rashly booked ourselves a summer holiday, more than two hours drive from our local hospital. Twelve hours drive and sixteen hours ferry away from our local hospital. Abroad! … Continue reading Brave, bruised, and better for it

Torn

We are just back from weekend trip to Aberdeen. I say ‘we’. I mean my husband and I, and the two girls. Our first trip away without Benjamin. I think we pulled off a pretty good impression of a ‘normal’ family on a ‘normal’ trip. Dare I say 'minibreak'? A few bags slung into the boot … Continue reading Torn

Postcode Lottery

I’ve always thought of myself as fortunate. Opportunities have landed in my path. My parents bought a house in the catchment area for a good school. My teachers saw to it that I got into a good university. That good education got me a job that I love. I have three beautiful children. My husband … Continue reading Postcode Lottery

In the shadow of Storm Brian

“You on your own then?” (I hasten to add this isn't a #metoo story; this was a genuine expression of surprise/concern). “Well my husband will be here soon [before it bloody rains, selfish ****]. He's cycling from Scotland.” “Ah (eyeing the back end of a five year old that has already spotted a rabbit and … Continue reading In the shadow of Storm Brian

Gone camping (again)

By popular request (although the friends due to come camping with us later in the year may regret it), there follows a report of this year’s Family Summer Holiday: A Wet Weekend in Wooler. Not that I’ve got anything against Wooler. Well not much. Read on. They say rain sounds much heavier from inside a … Continue reading Gone camping (again)

Gone camping

Q. What do you do in the summer holidays if you have three children under five, one breastfeeding constantly, one addicted to cartoons, and one severely disabled? A. Take them camping. No joke*. So, we picked a week with a half-decent weather forecast, if not a decent health forecast (Benjamin had just started vomiting up … Continue reading Gone camping

Twenty-or-so shortcuts of a special needs mum

When we first had a child, I remember thinking Wow, what did I do with all my time before? Now we’ve got three, one with severe and complex needs, I wonder What did I do with all my time when I only had one child? Or two? If there’s one thing most mums (and dads) … Continue reading Twenty-or-so shortcuts of a special needs mum