When life just carries on as normal

If you're a parent, you'll likely remember the feeling (how could you ever forget?) of emerging, blinking, into the light. Maybe from the hospital doorway; maybe your own front door. Maybe the very same day that precious bundle made its dramatic entry into the world; maybe one, two, or many, many days later. And… nobody … Continue reading When life just carries on as normal

Torn

We are just back from weekend trip to Aberdeen. I say ‘we’. I mean my husband and I, and the two girls. Our first trip away without Benjamin. I think we pulled off a pretty good impression of a ‘normal’ family on a ‘normal’ trip. Dare I say 'minibreak'? A few bags slung into the boot … Continue reading Torn

What a difference a drug makes

I’ve often joked that Benjamin is my easiest child. At least, alongside a five-year-old who will burst into tears if you suggest she watches CBeebies instead of Youtube (or, God forbid, actually turn the TV off), and a one-year-old who will literally climb the furniture to get at anything she shouldn’t have. He doesn’t answer … Continue reading What a difference a drug makes

Benjamin doesn’t tick boxes

An open letter to the Head of Education at East Lothian Council Dear Ms Robertson, Not having a tracheostomy is a good thing, isn’t it? Not being on TPN, not needing daily IVs, that’s good, isn’t it? Not if it means you can’t access the support you need. I am sending you an open letter, … Continue reading Benjamin doesn’t tick boxes

Complexity

‘Has he recently come into contact with a scorpion?’ the consultant asked. Now, I know Dunbar seems like the back of beyond to inhabitants of the capital but really? Apparently the only thing anyone remembers from medical school (I really hope it’s not the only thing) is the acronym I GET SMASHED, for the eleven … Continue reading Complexity