Cleaning up shit

At 4am this morning I was cleaning up shit. Because that's my job. (Except, as a carer it's a job I'm expected to to do for nothing. Nothing being very slightly less than the insulting carers' allowance that those who can't work alongside caring get. Which is slightly less again than the pitiful minimum wage … Continue reading Cleaning up shit

More than carers

Last week we said goodbye to someone we will all – Benjamin especially – miss like crazy. But it didn’t start out that way. I’m a proud person – I don’t like asking for help (my husband will tell you that’s an understatement). I’m a private person – I don’t like having other people in … Continue reading More than carers

Responsibility

If you’re a parent, you may remember that feeling of arriving home from the hospital, putting baby in his/her car seat down in the middle of the room, and realising, Shit, I’ve got to keep this thing alive. With Benjamin, that’s an experience that happens over and over again. The more hospital stays he has, … Continue reading Responsibility

To those who say my son is a drain on society

It’s about a year since I wrote a post for Scope about my disabled son, Benjamin, whom we decided to keep despite being offered a late termination of pregnancy. Amongst the many supportive comments on the post was one (swiftly removed by admin) that stuck in my mind: a comment berating me for my selfishness … Continue reading To those who say my son is a drain on society

Acceptance, accessibility and attitude

I am fortunate to have an incredibly understanding, flexible, patient employer. They have allowed me to cut my hours down to almost nil; I am secure in the knowledge that I can increase those hours again when my caring commitments allow; I am kept abreast of developments in the workplace; and I am welcomed with … Continue reading Acceptance, accessibility and attitude