Hypothetical questions

I almost didn’t post this. It’s personal, a bit controversial, very selfish; it may upset some readers. It doesn’t even come to any conclusions. However, I needed to write it to clarify my own thoughts and, having written it, it seemed hypocritical not to publish.

I’ve written before about wanting another child, and I know it’s an issue many SWAN parents face. It may seem nonsensical, after a tiring Christmas, a fortnight of being up every night to an unsettled toddler, of Benjamin throwing up a bottle of milk over my mother-in-law’s new carpet each evening, of a house so full of toys we can barely move … but it’s a fire that just keeps on smouldering.

Some days, I can post a picture on Facebook of Benjamin batting (in an uncoordinated, stiff, kind of way) at some baubles and be proud of all he’s achieved. Others, I go along to Rhymetime at the library, see all his peers sitting and giggling, crawling, maybe even walking, and just feel I want one of those. And Jackie needs one too. It’s not rational; it’s not intentional. I know I should be grateful: what is this compared to the pain of infertility, or the pain of losing a child?

Since even before Benjamin was born I have pinned my hopes on one miracle after another, only to have each of them fade away. At first, it seemed likely that his condition was caused by a freak chromosomal rearrangement or some kind of infection during pregnancy; that our chances of having a second disabled child were as low as anyone else’s. That hope has gradually diminished and was finally all-but-snuffed-out by our genetic counsellor last month. He’d done his homework, spoken to “the scientists” and they were all certain – as certain as they can be without a diagnosis – that this is not the case. The best guess of the best guessers in the business is that Benjamin has inherited matching faulty genes from both his parents – and therefore the chance of another child of those parents receiving the same genetic combination is one-in-four.

Science can do amazing things nowadays. All they have to do is find the gene responsible, then we can have IVF and pre-implantation diagnosis, weed out any affected embryos and get a guaranteed healthy baby, right? But fewer than one-in-three children in our genetic study get even a partial genetic diagnosis. Many families have been on the study for years and are none the wiser, although I’m told results are coming faster now. And even in the event that they do find the gene responsible, we would have to find a doctor willing to apply for a license to screen for that gene, an application process which could take months if not years. And all the time the biological clock is ticking and the age-gap between Jackie and her playmate is getting ever greater.

Okay, so forget the fancy test-tubes. Why not just get pregnant, terminate the pregnancy if anything’s wrong, keep trying until we get a healthy baby? The thought of this makes me heave. It’s not just that we’d have to go for 26 weeks, maybe more, before any differences in the baby’s brain would become apparent. It’s the fact that, having had Benjamin, we know that he is happy, contented. He might be hugely delayed but he is not suffering. There is no humanitarian reason to terminate a child like him. We’d be saying to the next baby, we took a gamble with your life and you lost. We chose to create you, but now you’re too much like hard work. And we’d be saying to Benjamin: lovely as you are, we wouldn’t want two of you.

Perhaps we could adopt? A great thing to do: take an unwanted child, make it very much wanted. I went so far as to talk to a young, earnest guy at our local adoption service about it. It seems my notion that there are hundreds of young girls having perfect babies out of wedlock and handing them over to the authorities is rather Victorian. The only children awaiting adoption nowadays are either severely abused or severely disabled; sometimes both. Don’t get me wrong: I would love to give one of these kids a loving, stable home. But what is the likelihood that the authorities would place such a child – one who needs all the care and attention she can get – with a couple who are already stretched enough dealing with their own two children, one of them with severe and complex needs? Practically nil.

One evening, my parents took care of Jackie and Benjamin. Ric and I went out for a fancy dinner, our first night out without the children in, maybe, two-and-a-half years. I managed to resist texting home more than once (maybe twice?). We congratulated ourselves on not talking about the children all night. Instead, we talked about conceiving another. One of us wouldn’t want to use donor eggs or sperm. One of us doubts it is worth freezing some embryos in the hope of a diagnosis years down the line. One of us thinks it is too much of a risk to take that one-in-four chance. One of us thinks we will always regret it if we don’t try.

We didn’t get any closer to deciding. In the end, we will do something, or we will wait so long that it will be too late (we are not the most decisive people at the best of times; on our first date it took us three hours to choose a restaurant). It may be naïve, but I wonder if the only way to know how we should act is to take that risk. I have a feeling (a 75% feeling, I suppose) that if we manage to conceive, then everything will be alright. But if I’m wrong…? Could I terminate? Could I give the baby up for adoption? Would that be a terrible thing to do – bringing a child into the world in the full knowledge that it might be disabled, not having the courage to abort it, then making it someone else’s problem, and society’s financial burden. And if the baby is healthy, does that make me just as morally corrupt as if I’d aborted or given it up, just because I got lucky and didn’t have to choose? I can’t help feeling it’s not fair: we did all our soul-searching before Benjamin was born. Why do we have to do it all again? Could I trust that God will give us a break this time? We only want to do the right thing for our children, existing and potential.

One thing I do know is that we are truly blessed with the two beautiful children we have. Every day, I am glad for each of them. Glad we had Jackie first, because if we hadn’t, we probably wouldn’t have had her at all. Glad we had Benjamin: you only have to see him with Jackie to know that it was the right thing for all of us. Glad, yet grieving. Grieving for the person Benjamin will never be. Grieving for the life Jackie could have had, the life we all could have had. And grieving for the third child we may not be brave enough to try for.

Advertisements

5 thoughts on “Hypothetical questions

  1. That yearning for another child does not make you selfish, nether does pondering and working through all those complex arguments for and against. It is a moral maze and all you are doing us trying to unravel it. Your conflicting feelings and emotions are understandable.
    From experience, the age-gap between your children is irrelevant. Whether it is a small, medium or large gap, your family is shaped as it is and will bring you delight and pleasure, as well as anxiety and heartache. How your children interact due to a larger than desired age-gap may be different to how you imagined, (but remember, life is never as we imagine), but it is still beautiful. There are positives and negatives to any age gap, be assured of that. The gap between my children is larger than I desired, but their love for each other cannot be denied. They still argue, but when push comes to shove, and believe me it has, they have defended and supported each other to the hilt.
    After losing three children, all at different stages of pregnancy, after investigations and trips to London, my husband and I decided to have one more try for our second child. The gamble paid off, but it could so easily have ended in tragedy a fourth time. Despite longing for four children, I had to learn to be content with two. The trauma on my body and on the lives of my husband and children took priority, even though I still have those unfulfilled desires and longings. The yearning for more children still nags, even as I enter the menopause, but in the end we make decisions and we live with them. Life throws situations at us and we have to make difficult decisions. You can have regrets lingering, but they don’t have to over power you. You can delight in what you have, but still harbour unfulfilled dreams.
    Recognise and accept those feelings, acknowledge them, but know that they will eventually pass. They don’t mean you have to constantly dwell on them and be forever unhappy; they don’t mean that you don’t appreciate the wonderful things you do have. You don’t have to feel guilty because you have a desire for another child. So acknowledge your feelings, let them come, let them pass in their own time, enjoy what you do have, make a decision when you’re ready and accept it as right.
    In the end, you will know what is the right thing to do. You will find peace in your decision, whatever that may be, and you will learn to live with the happiness you have been given.

    Like

    • Thank you Sue, wise words and heartfelt ones too. Some of what you say is easier said than done but I guess time will help. I appreciate you sharing your experience so honestly. X

      Like

  2. I also debated having another child after my only son was born with autism (of which there is no prenatal test for). In the end I couldn’t do it again or go through it again…I just couldn’t risk it. You do a beautiful job of explaining the daunting complexity of the issues as they aren’t for the faint of heart. Good luck with whatever road you choose to go down.

    Like

  3. Pingback: Gambling | The long chain

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s